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Posts Tagged ‘Alzheimer’s disease’

Authors Nader Robert Shabahangi and Bogna Szymkiewicz use the term “forgetfulness care” when discussing issues of care for people having the diagnosis of dementia or Alzheimer’s Disease.

In this section, they discuss the anticipatory grief that caregivers can go through:

Feelings of Loss

“If you feel close to a person who develops symptoms of forgetfulness, you are likely to experience feelings of grief and loss — not only after a person dies, but also as the condition progresses.

This is sometimes called anticipatory grief and includes:

  • Loss of a person you knew before.
  • Loss of a relationship you liked
  • Loss of a person’s former self.

Friends and family members may experience:

  • Loss of future plans (going on holidays next year, taking care of the garden together)
  • Loss of companionship and support.
  • Loss of a lifestyle they once had together (reading newspapers and sharing comments every morning, going to the opera once a month, eating lunch at the kitchen table).

Caregivers may experience:

  • Grief and a sense of loss when they see pain and suffering on a daily basis.
  • Sadness and anger as a person with forgetfulness symptoms slowly goes to another realm.

Grieving for a person with forgetfulness symptoms alternates:

  • Between despair and strong hope that everything will return to the way it was,
  • Between acceptance and non-acceptance.
For THE BEST information about forgetfulness diseases, hop over to Alzheimer’s Speaks Blog.  Lori is incredible and her blog is one of the most valuable resources out there!!!!
Will post a link when Lori and I sit down and talk about grief issues related to loss connected to losing someone you love who has lived with Alzheimer’s and dementia.  Stay Tuned!

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Here is the last post from Deeper into the Soul, a book on looking at Alzheimer’s & Dementia Care.  Take a look. . . .

“According to Arnold Mindell and many spiritual traditions, we can talk about three levels of reality, or realms of perception:

Essence

This is the root of all things, the oneness where everything is interconnected.  Essence is the source of subtle tendencies that occur before they can be verbalized, such as a tendency to move before moving.  Experiences here are the seed, or core, of an experience from which the other realms of consensus reality and Dreamland arise.  Arnold Mindell talks about it in terms of energetic tendencies that dream everyday life to existence  Essence has may names, such as Great Spirit, God, Yahweh, Allah, Void, Quantum Wave function, and the Tao that cannot be spoken.  Sometimes it happens through deep altered states of consciousness.  Coma, near-death experiences, certain meditations, as well as forgetfulness may open pathways to this Essence.”

From:  Deeper into the Soul:  Beyond Dementia & Alzheimer’s Toward Forgetfulness Care by Nader R. Shbanhangi & Bogna Szymkiewicz

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Einsteins Dreamscape by artist Tom WIlcox @ http://tomwilcox.deviantart.com/art/Einsteins-Dreamscape-57361496

Here is the next post from Deeper into the Soul, a book on looking at Alzheimer’s & Dementia Care.  Take a look. . . .

“According to Arnold Mindell and many spiritual traditions, we can talk about three levels of reality, or realms of perception:

Dreamland

“This is the world we visit in our nightly dreams, visions, and other subjective experiences, such as emotions or pain.  We see things that others cannot notice; we have feelings that are not easily explained to others.  As Mindell puts in his book The Dreammaker’s Apprentice:  “The parts of Dreamland are virtual; only you, the dreamer, see or feel or experience them.  You cannot show them to anyone else.  You can see your dream image, but no one else sees the same thing as long as their consciousness is focused solely on consensus reality.”  The table in my dream may be clear to me, but you don’t see it in the same way.  Yet, experiences in Dreamland are no less important than those from consensus reality.  On the contrary, some of them are our deepest feelings and insights.”

From Deeper into the Soul:  Beyond Dementia & Alzheimer’s Toward Forgetfulness Care by Nader R. Shabahangi & Bogna Szymkiewicz.

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The next couple of posts are from Deeper into the Soul, a book on looking at Alzheimer’s & Dementia Care.  Take a look. . . .

“According to Arnold Mindell and many spiritual traditions, we can talk about three levels of reality, or realms of perception:

Consensus Reality:

This is our everyday reality:  the world we agree upon, where we notice similar things and give them names.  Consensus reality is considered the most “real” by most people. Here we agree on what exists and what does not; we share perceptions, even if our opinions and judgments differ.  For example, we look at a table and agree that it is a table.”

From:  Deeper Into the Soul:  Beyond Dementia & Alzheimer’s Toward Forgetfulness Care by Nader R. Shabahangi & Bogna Szmikiwicz

Note:  I will be away on retreat for the next week.  I wish you all well and I hope you enjoy the articles that I have left in my stead.

May sorrow show us the way to compassion

May I realize grace in the midst of suffering

May I be peaceful and let go of expectations.

May I receive the love and compassion of others.

With love and deep gratitude, Jennifer

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The Presence Care Project is a new, innovative mindfulness-based dementia care training for family and professional care partners (caregivers). Unlike other forms of training that are skills-based only and tend to be quickly forgotten, the Presence Care approach results in sustained attitudinal changes aimed at benefiting care partners throughout the long journey of dementia. The Presence Care training is the only mindfulness-based program designed specifically to meet the unique challenges of dementia care.

Read this blog post…   I love this … I can’t wait to find out more about their organization.

Metta

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